Who We Are

In early 2025, on 2 January 2025, to be exact, our family began hearing terms we had never encountered before. During medical discussions, we were told that Hamza likely had occipital blindness or cortical blindness. It was a term that immediately brought uncertainty, and we never imagined how our world would turn upside down when we heard it.

We were told that his eyes were structurally healthy, yet something about how he responded to the visual world after his discharge from the ICU in November 2024, following 16 days of admission, felt different.

As we continued seeking clarity, further understanding and professional input helped refine the picture. We learned that the broader diagnosis was Cerebral Visual Impairment, or CVI.

CVI is a neurological condition. It affects how the brain processes visual information. A child with CVI may have healthy eyes, but the brain interprets visual signals differently due to disruption in the visual processing pathways.

What began as confusion slowly became understanding. We realised that the terminology had evolved. What was once widely referred to as Cortical Blindness is now more accurately described as Cerebral Visual Impairment, reflecting the understanding that visual processing involves wider areas of the brain beyond just the cortex.

For us, this was not simply a diagnosis. It was the beginning of a learning journey.